Hope for children with severe forms of epilepsy
Supporting children and families impacted by rare genetic epilepsies.
The AnnikaH Foundation is a registered UK charity, created to help improve the lives of children and families affected by severe forms of epilepsy and complex disability.
Turning lived experience into meaningful support
Turning lived experience into meaningful support
The AnnikaH Foundation was established by a UK-based family whose young daughter lives with a severe form of epilepsy caused by a rare de novo genetic mutation.
Severe forms of epilepsy can lead to drug-resistant seizures, profound developmental challenges and lifelong medical needs. For many families, the condition affects every aspect of daily life, bringing ongoing uncertainty and the demands of managing complex care.
The Foundation exists to turn first-hand experience into action, supporting carefully selected charities, schools and research projects working to improve the lives of children and families affected by severe epilepsy and related challenges.
The AnnikaH Foundation Trustees
“Our goal is to improve the lives of children and families touched by rare forms of epilepsy. We understand the challenges first-hand – the relentless seizures, the uncertainty and the search for treatments. Our mission is to turn that experience into action by providing support to families facing the same journey.”
The AnnikaH Foundation Trustees
Who we have helped
Who we have helped
The AnnikaH Foundation works with carefully selected partner organisations to ensure funding reaches those who can deliver the greatest benefit.
To date, support has included:
- Specialist equipment through Variety, the Children’s Charity
- A wheelchair swing and wheelchair-friendly gardening site for a local special needs school
- Sensory equipment for a hydrotherapy pool at Noah’s Ark Children’s Hospice
- Youth support workers through Young Epilepsy
- Yoga therapy for children with disabilities and specialist needs through Mahadevi Yoga Centre[MS1]
Our partners
We are grateful to work with trusted partners and organisations who help us deliver responsible, meaningful support.
